Hello Everyone-
Kara is going to try to post; but with three kids it is hard to get to the computer.
Monday was another very long tiring day at the hospital. Caitlyn and her Dad left early in the morning to get down to the hospital for the MRI. Her Mom got the boys off to school and then met them at the hospital.
The last MRI the doctors saw a slight increase in the tumor but the MRI was classified as stable. This MRI shows additional growth and the doctors are now classifying the MRI as PD - progressive disease.
The good news is that usually when a DIPG tumor starts to grow the growth is very fast and aggressive; but in Caitlyn's case the growth is slow. This indicates that her current treatment protocol is at least slowing the tumor down. Also she is not showing any symptoms that indicate that the tumor is affecting her balance, vision, or reflexes etc.
There is not another clinical trial open at this time, so the plan is to continue on the same treatment plan. The next MRI is scheduled in 4 weeks.
Please pray that God will stand with the family and give them hope in this battle. Please keep Caitlyn, Kara, Jason, Patrick and Jackson in your prayers.
Thank you,
Margaret Donahue
