Well, December 22nd marks 7 months since Caitlyn was diagnosed. We were told she had 6 to 9 months to live. They say the holiday season is a time to reflect on the past year and be thankful for all you have. Well, I never truly lived those words until this year. I sit back and think of the roller coaster ride we have been on since May 22nd and I am so thankful that none of us has fallen off the ride. It has been trying on our faith, hope, and courage. Of course we are thankful that Caitlyn is still with us however we could not have gotten this far if we had not been given the gift that we were not even aware of needing. That being the strength to continue to live, while faced with the unthinkable. That is truly a gift from God. With out the courage and faith that God will lead us where we need to go we would be lost.
Caitlyn is doing well, we are having a great holiday season. The kids are having fun and the fact that Caitlyn is doing so well makes everything seem normal. Last Monday she had another round of her Chemo and is doing well. Other then a rash on her arm where the injection is and some nausea for a few days after treatment she is handling it well. Of course I always wonder about the drugs we are putting in her body and is it doing more harm then good since it is a trial. However it is giving us precious quality time with her and clinically speaking she is doing great. She will have another MRI January 14th. I no longer look forward to the MRI's as they can only bring your hope down. I look at her and I feel positive, hopeful, and courageous because that is what SHE IS showing me.
All of this has changed the way I listen to the world now. Since cancer has happened into our life's our world is so much quieter now. I can hear things that I did not hear before. I guess that is the gift cancer has given us. It will not beat us and tear us apart it WILL make us stronger even if that is not what it had planed to do.
I hope everyone enjoys their time with their family's this Christmas I know I will. Have a Merry Christmas.
Kara
Sunday, December 23, 2007
Tuesday, December 4, 2007
12/04/2007
The holiday season is here and we started it off in the best way. The day after Thanksgiving, my mom and I took the kids to Idaho. Jason stayed behind in the real world, worked and did many unfinished chores. He surprised us with A LOT of honey-do tasks around the house (ie... He got the Christmas lights up outside, Caitlyn's room got a new paint job, tv room got a new paint job, and the bathroom got some new tile). He worked hard at home and we appreciate it.
We had a GREAT time in Idaho. We visited relatives and showed the kids the beauty of the mountains. For those of you who don't know where Idaho is it is on the west coast between Montana and Washington state (not Washington D.C which I am sometimes asked). The kids had fun meeting all their second & third cousins and seeing their grandparents & great grandparents. It snowed while we were there and the boys loved being able to sled everyday. Caitlyn went out and down the hill a few times too. Patrick even tried sticking his tongue to the flag pole --thank God it didn't stick.
The plane ride there and back was perfect ( No delays and there were even open seats). It was like it was all meant to be. We had to make connections both times so the boys were excited to sit by a stranger. My mom, Caitlyn and I were always behind or across the aisle. Caitlyn said to me, "Mom I thought you told the boys to never talk to strangers." I told her it was ok this time because I was right there. Also I felt more sorry for the stranger. Actually everyone they sat by told me what nice boys I had. Except the last person on the way home, I don't think he liked the water they dripped on his book while they were handing the stewardess their drinks.
Caitlyn is doing well. She did get sick in Idaho a few times but the doctors are not sure what it is because she looks so good. She has no other symptoms so we think it is a side effect from the chemo. She had her third round of chemo yesterday it was a very long day. She looks very tired today and I have finally coaxed her into taking a nap.
We are taking it one day at a time. We Thank God for each day we can live normally and it's what get us to the next day. So back to small steps and little planning. We just pray for a healthy and symptom free holiday. The kids will all be in the Christmas pageant - Patrick one of the Wise Men, Jackson a Shepherd and Caitlyn --what else an ANGEL.
God bless everyone this holiday season and thank you for all your support and prayers. The lives that Caitlyn has touched are brought to our attention everyday in some small way. We would like to thank the Wiltgen family and the Laning family for sharing Caitlyn's story with so many people. Carole Laning touched so many people and that is showing now through the support that Caitlyn is receiving through the people who cared about Carole. Thank you.
Have a blessed and safe holiday season
Kara & The Churak Family
We had a GREAT time in Idaho. We visited relatives and showed the kids the beauty of the mountains. For those of you who don't know where Idaho is it is on the west coast between Montana and Washington state (not Washington D.C which I am sometimes asked). The kids had fun meeting all their second & third cousins and seeing their grandparents & great grandparents. It snowed while we were there and the boys loved being able to sled everyday. Caitlyn went out and down the hill a few times too. Patrick even tried sticking his tongue to the flag pole --thank God it didn't stick.
The plane ride there and back was perfect ( No delays and there were even open seats). It was like it was all meant to be. We had to make connections both times so the boys were excited to sit by a stranger. My mom, Caitlyn and I were always behind or across the aisle. Caitlyn said to me, "Mom I thought you told the boys to never talk to strangers." I told her it was ok this time because I was right there. Also I felt more sorry for the stranger. Actually everyone they sat by told me what nice boys I had. Except the last person on the way home, I don't think he liked the water they dripped on his book while they were handing the stewardess their drinks.
Caitlyn is doing well. She did get sick in Idaho a few times but the doctors are not sure what it is because she looks so good. She has no other symptoms so we think it is a side effect from the chemo. She had her third round of chemo yesterday it was a very long day. She looks very tired today and I have finally coaxed her into taking a nap.
We are taking it one day at a time. We Thank God for each day we can live normally and it's what get us to the next day. So back to small steps and little planning. We just pray for a healthy and symptom free holiday. The kids will all be in the Christmas pageant - Patrick one of the Wise Men, Jackson a Shepherd and Caitlyn --what else an ANGEL.
God bless everyone this holiday season and thank you for all your support and prayers. The lives that Caitlyn has touched are brought to our attention everyday in some small way. We would like to thank the Wiltgen family and the Laning family for sharing Caitlyn's story with so many people. Carole Laning touched so many people and that is showing now through the support that Caitlyn is receiving through the people who cared about Carole. Thank you.
Have a blessed and safe holiday season
Kara & The Churak Family
Tuesday, November 20, 2007
11/20/2007
(11/18/07 - A Princess meets Daisy Duck) Hi Everyone
Just a quick post. The Churaks are going out of town the day after Thanksgiving so things have been a little hectic between daily life, doctor visits, laundry, and packing.
Caitlyn is doing well. She had two very long days at the Hospital this week. Monday she had her second dose of Avastin; and today she had her first dose of Irinotecan -- both via IV drip.
Caitlyn also had a MRI yesterday. It was the first MRI where she was not sedated. Kara sat in the room with her and Caitlyn watched her for awhile -- but then she fell asleep and was able to lay still for the whole 90 minute MRI. Is this not an AMAZING girl!? She is a lot braver than I am that is for sure. She even impressed all the nurses on the floor.
Please continue to pray for the Churak family. Pray that Caitlyn accepts the new medicine without side effects. Please also pray for the other families battling DIPG and other illnesses especially Katie Metz (www.carepages.com "katiemetz") and Natalie Rose Jones (www.caringbridge.org/visit/natalierosejones)
Please also pray for all families traveling this holiday.
Please also pray for all families traveling this holiday.
Have a Blessed & Happy Thanksgiving!
-Margaret Donahue
Tuesday, November 6, 2007
11/05/2007
Today Caitlyn had the first part of her dose for the new trial Avastin. She seems to be tolerating it well. No side effects yet and hopefully not any later as well. On November 19th she will get her dose of Avastin and Irinotecan. The combination of the two of these drugs are or we hope more effective then just the Avastin. Alone we know does not work on it's own. The Avastin is supposed to cut off the blood supply to the tumor and the Irinotecan is supposed to tell the body to not try and repair itself. Let's pray this works.
We continue to live for each day that is in front of us. It is not easy I have to constantly tell myself "be happy for today. Today she is feeling good and is healthy". It only makes the pain hurt more when you think about the future and try and plan for Christmas and Thanksgiving and think "will she still be healthy then?" So that is why we have already bought our Thanksgiving outfit and have already worn it twice. My suggestions to all moms that see this posting. If you already have your children's holiday outfits, let them wear them now and when ever they want to. It is a very freeing feeling to let go of all those restrictions we put on ourselves that go along with planning.
Please continue to pray for our family and all other family's that are going through an illness with a loved one.
Kara
There are two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein
We continue to live for each day that is in front of us. It is not easy I have to constantly tell myself "be happy for today. Today she is feeling good and is healthy". It only makes the pain hurt more when you think about the future and try and plan for Christmas and Thanksgiving and think "will she still be healthy then?" So that is why we have already bought our Thanksgiving outfit and have already worn it twice. My suggestions to all moms that see this posting. If you already have your children's holiday outfits, let them wear them now and when ever they want to. It is a very freeing feeling to let go of all those restrictions we put on ourselves that go along with planning.
Please continue to pray for our family and all other family's that are going through an illness with a loved one.
Kara
There are two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein
Friday, November 2, 2007
11/02/2007
We received Caitlyn's MRI results late yesterday. The test showed no enhancement of the tumor. This was a great relief after the last two MRI's were not what we had hoped. That being said, she is eligible for the trial with Avastin and Irinotecan. We will start this Monday. She will have an IV infusion every 15 days. Please pray that the side effects are manageable for her body and that this works for her.
As a lot of you may know we have been anxiously researching any and every treatment that Caitlyn may benefit from. We have been following leads that people are sending us. Here is where we are with that. Several people told us about Dr. Spetzler who operated on a local girl with an inoperable tumor. Her story was in the Daily Herald. We contacted the doctor and sent scans for him to review. He called us back to tell us he could operate on part of her tumor; but he could not remove the whole thing. Our doctor even talked with him. Unfortunately this is an all or nothing situation. Removing part of the tumor is of no use -- because the type of cancer is very aggressive and will only grow back.
We have also looking into a couple different clinics and institutes that claim to have a cure; but they show as much success rate as the clinical trials we are looking at. I do believe diet is a very big part in trying to cure cancer but it is easier said then done to get 20 different vitamins down a 5 year old. Or juicing 20 pounds of vegetables a day. We have to think about the quality of life and her happiness. She is so happy everyday and I don't want to take that away from her. We are working with a nutritionist to see if they can help us sort all of this out.
Thank you for all your support, prayers, and for trying to find a cure for our daughter. It means so much to know that people we know and don't know care so much.
Kara
As a lot of you may know we have been anxiously researching any and every treatment that Caitlyn may benefit from. We have been following leads that people are sending us. Here is where we are with that. Several people told us about Dr. Spetzler who operated on a local girl with an inoperable tumor. Her story was in the Daily Herald. We contacted the doctor and sent scans for him to review. He called us back to tell us he could operate on part of her tumor; but he could not remove the whole thing. Our doctor even talked with him. Unfortunately this is an all or nothing situation. Removing part of the tumor is of no use -- because the type of cancer is very aggressive and will only grow back.
We have also looking into a couple different clinics and institutes that claim to have a cure; but they show as much success rate as the clinical trials we are looking at. I do believe diet is a very big part in trying to cure cancer but it is easier said then done to get 20 different vitamins down a 5 year old. Or juicing 20 pounds of vegetables a day. We have to think about the quality of life and her happiness. She is so happy everyday and I don't want to take that away from her. We are working with a nutritionist to see if they can help us sort all of this out.
Thank you for all your support, prayers, and for trying to find a cure for our daughter. It means so much to know that people we know and don't know care so much.
Kara
Monday, October 29, 2007
10/29/2007
First I want to start off by thanking Dobby's for the wine tasting. I was not able to attend. With Caitlyn's treatment plan up in the air I'm finding it hard to go out and be normal. I really wish I could have been there. I was told it was a great turn out and everyone I talked to said they had a great time. The wine was great and the food was wonderful. Thank you for everyone who helped with this event. Thank you to Dobby's, Jerry Kohn, Jean Dziedzic, and the local restaurants for the food (Durty Nellies, Lamplighter, Heng Weng, Artisitc Cuisine, & Siri Thai). Also thank you to Bob & Sharon, Margaret, Cindy, & Geri for attending in Jason and my place. Also Amy and Tom Barker did a great job on the flyer -- thank you.
Well a lot has been happening in the past few weeks since we have learned that we need to pick a new treatment plan. We have been really struggling with which experimental trial to pick. It is so hard because none of them are a cure. Nothing has really shown any success -- the reason being that they have not found a way to break the brain blood barrier. We are researching some homeopathic treatments. It seems that the few kids I have found that are alive past one year are doing some type of homeopathic treatment. We have to decide by Wednesday what we are doing. That is the day she is going into Children's to do another MRI to see if the tumor has any hemorrhaging. She can not have hemorrhaging if we want to put her on the Avastin and Irinotecan trial. We think her MRI will come back clean and are not worried about that.
If anyone has any info on the Avastin/Irinotecan trial please email us (info@caitlynchurak.com). It is in Phase 2 so there should be some DIPG families out there.
In the meantime we are living life to the fullest. Last week Caitlyn was treated to a limo ride downtown by her to best buddies Olivia and Caleigh. Of course us mom went along too. We arrived at the American Girl Doll store and had lunch with our dolls. Then we took the dolls on a shopping spree. Yes, I know what your thinking....I never thought I would get caught up in this cult but I have. I still think it is a little strange; but Caitlyn loves it. We took the train home and had a great day.
Friday we went to a Wolf Hockey game and the kids had a great time. Then Sunday Uncle Jimmy treated the kids to a Bears game front row seats behind the field goal. They all had a blast.
Caitlyn has been wearing her Minne Mouse costume around for the last few weeks since we kind of thought she might be in the hospital on Halloween. That is the day she will be having her MRI so she will miss trick or treating. Today, Lynn Klein had a Halloween party at her house with some of the girls from school. She asked her neighbors if they could pass out candy on Monday when the girls from the party came around. They had such a great time and Caitlyn won't feel like she missed out. After that we went to her Godmothers house Susan, and had another party with a pinata which is Caitlyn's all time favorite.
Thank you to all our friends and family that are helping all of us through this tough time. You have no idea how the littlest thing you do makes such a big different in someones life. There are tons more that people are doing and we want recognize all of them. From meals, helping with photos, just coming along and having fun with us, cards, emails, prayers, people are always sending us any info that they think might help us in this fight to save our daughter. Please know that we do notice it all. Even if we don't seem like we do. We just have so much on our minds right now. Somedays I can't remember why I walked into a room. So if we haven't acknowledged you please know we are grateful.
Please say a prayer for Mrs. Held who just lost her mother. She was Jackson's first grade teacher last year. She has held us close to her heart since May and we appreciate it. Also please say a prayer for the Wiltgen/Laning family who unexpectedly lost a member of their family. The Wiltgen/Laning family have been praying for our family since May as well. We are truly saddened for the loss of these family's loved ones; but it gives me comfort that there are two more angels in heaven looking down on us.
Thank you for touching our lives.
--The Churak Family
Well a lot has been happening in the past few weeks since we have learned that we need to pick a new treatment plan. We have been really struggling with which experimental trial to pick. It is so hard because none of them are a cure. Nothing has really shown any success -- the reason being that they have not found a way to break the brain blood barrier. We are researching some homeopathic treatments. It seems that the few kids I have found that are alive past one year are doing some type of homeopathic treatment. We have to decide by Wednesday what we are doing. That is the day she is going into Children's to do another MRI to see if the tumor has any hemorrhaging. She can not have hemorrhaging if we want to put her on the Avastin and Irinotecan trial. We think her MRI will come back clean and are not worried about that.
If anyone has any info on the Avastin/Irinotecan trial please email us (info@caitlynchurak.com). It is in Phase 2 so there should be some DIPG families out there.
In the meantime we are living life to the fullest. Last week Caitlyn was treated to a limo ride downtown by her to best buddies Olivia and Caleigh. Of course us mom went along too. We arrived at the American Girl Doll store and had lunch with our dolls. Then we took the dolls on a shopping spree. Yes, I know what your thinking....I never thought I would get caught up in this cult but I have. I still think it is a little strange; but Caitlyn loves it. We took the train home and had a great day.
Friday we went to a Wolf Hockey game and the kids had a great time. Then Sunday Uncle Jimmy treated the kids to a Bears game front row seats behind the field goal. They all had a blast.
Caitlyn has been wearing her Minne Mouse costume around for the last few weeks since we kind of thought she might be in the hospital on Halloween. That is the day she will be having her MRI so she will miss trick or treating. Today, Lynn Klein had a Halloween party at her house with some of the girls from school. She asked her neighbors if they could pass out candy on Monday when the girls from the party came around. They had such a great time and Caitlyn won't feel like she missed out. After that we went to her Godmothers house Susan, and had another party with a pinata which is Caitlyn's all time favorite.
Thank you to all our friends and family that are helping all of us through this tough time. You have no idea how the littlest thing you do makes such a big different in someones life. There are tons more that people are doing and we want recognize all of them. From meals, helping with photos, just coming along and having fun with us, cards, emails, prayers, people are always sending us any info that they think might help us in this fight to save our daughter. Please know that we do notice it all. Even if we don't seem like we do. We just have so much on our minds right now. Somedays I can't remember why I walked into a room. So if we haven't acknowledged you please know we are grateful.
Please say a prayer for Mrs. Held who just lost her mother. She was Jackson's first grade teacher last year. She has held us close to her heart since May and we appreciate it. Also please say a prayer for the Wiltgen/Laning family who unexpectedly lost a member of their family. The Wiltgen/Laning family have been praying for our family since May as well. We are truly saddened for the loss of these family's loved ones; but it gives me comfort that there are two more angels in heaven looking down on us.
Thank you for touching our lives.
--The Churak Family
Monday, October 22, 2007
10/22/2007
I just wanted to let everyone know what is going on with Caitlyn's treatment plan.
I guess we will not talk to Dr. Goldman until after his next meeting this Thursday. She is not able to start a new trial until she has been off medicine for three weeks --Which will be next Wednesday. Caitlyn is still doing well and we are reviewing all the different trials. There are about 4 or 5 that we are looking at. Unfortunately there is not a lot of info available about how they would work with this type of tumor, although they have worked well on other cancers.
We are still staying positive and trying not to let the diagnosis ruin our lives or our happiness. The good and most important thing, is Caitlyn is having the time of her life. We are doing so many girly things and just living life. She has no idea what the doctors are saying and I thank God for that. She sees everyday as a new opportunity to have fun and love life. She tells me, "I love Kindergarten. It is so much fun, and I love all my friends".
I ask her everyday if she wants to go to school or stay home with me. She chooses to live life with out a second thought. And she REALLY loves helping me with market day. Last Tuesday she said " Mom I love working with you it is so much fun, and we get a surprise at the end. This is the greatest". If we could only take the time to learn from our children and not think that WE always have something to teach THEM. Maybe they could show us how to be happy in our darkest times. I know this is easier said then done. But wouldn't it be great if we could?
Please continue to pray that we are granted more quality time with Caitlyn. Please also pray for the other children who are sick or who have lost their battle. Please pray for their families as well. I know I pray for those moms and dads every night.
Kara
I guess we will not talk to Dr. Goldman until after his next meeting this Thursday. She is not able to start a new trial until she has been off medicine for three weeks --Which will be next Wednesday. Caitlyn is still doing well and we are reviewing all the different trials. There are about 4 or 5 that we are looking at. Unfortunately there is not a lot of info available about how they would work with this type of tumor, although they have worked well on other cancers.
We are still staying positive and trying not to let the diagnosis ruin our lives or our happiness. The good and most important thing, is Caitlyn is having the time of her life. We are doing so many girly things and just living life. She has no idea what the doctors are saying and I thank God for that. She sees everyday as a new opportunity to have fun and love life. She tells me, "I love Kindergarten. It is so much fun, and I love all my friends".
I ask her everyday if she wants to go to school or stay home with me. She chooses to live life with out a second thought. And she REALLY loves helping me with market day. Last Tuesday she said " Mom I love working with you it is so much fun, and we get a surprise at the end. This is the greatest". If we could only take the time to learn from our children and not think that WE always have something to teach THEM. Maybe they could show us how to be happy in our darkest times. I know this is easier said then done. But wouldn't it be great if we could?
Please continue to pray that we are granted more quality time with Caitlyn. Please also pray for the other children who are sick or who have lost their battle. Please pray for their families as well. I know I pray for those moms and dads every night.
Kara
Wednesday, October 17, 2007
10/16/2007 - MRI #3
Caitlyn's tumor has grown about 30% in the past 12 weeks.
We spent some time talking with Dr. Goldman last night after her MRI. We looked at the scans and could see the growth. Dr. Goldman did say on a good note, that from the measurments it appears to be growing slowly. This means that the Zarnestra is keeping it at a slower pace; because normally when this tumor shows re-growth it just explodes.
Now Jason and I start the process of reading through our options of other trials. The brain tumor consortium is meeting this Thursday and our doctor will be there to discuss our options. We hope to have a new plan of attack by the end of this week.We continue to fight for our daughter's life, and know this battle will not be easy. We have to stop the tumor from growing anymore. We recognize that the only way to really stop it from growing is with a cure--and currently there is no cure for this type of tumor.
That is why, I ask you to read the link to curesearch.com (below). Learn what you can do to make sure the Conquer Childhood Cancer Act gets passed. There is not enough research being done and funding has been cut.Thank you for all your support and prayers. I have learned to wish and pray for small miracles while I'm waiting for the big one. So for now we pray that we will find a cure with our next trial or at least another 5 months of quality life for Caitlyn before we have to try something new. I will post again when we know what our next step will be.
The Churak Family
We spent some time talking with Dr. Goldman last night after her MRI. We looked at the scans and could see the growth. Dr. Goldman did say on a good note, that from the measurments it appears to be growing slowly. This means that the Zarnestra is keeping it at a slower pace; because normally when this tumor shows re-growth it just explodes.
Now Jason and I start the process of reading through our options of other trials. The brain tumor consortium is meeting this Thursday and our doctor will be there to discuss our options. We hope to have a new plan of attack by the end of this week.We continue to fight for our daughter's life, and know this battle will not be easy. We have to stop the tumor from growing anymore. We recognize that the only way to really stop it from growing is with a cure--and currently there is no cure for this type of tumor.
That is why, I ask you to read the link to curesearch.com (below). Learn what you can do to make sure the Conquer Childhood Cancer Act gets passed. There is not enough research being done and funding has been cut.Thank you for all your support and prayers. I have learned to wish and pray for small miracles while I'm waiting for the big one. So for now we pray that we will find a cure with our next trial or at least another 5 months of quality life for Caitlyn before we have to try something new. I will post again when we know what our next step will be.
The Churak Family
Tuesday, October 16, 2007
10/16/2007 - Conquer Childhood Cancer Act
The Conquer Childhood Cancer Act
Do You Have Five Minutes?
That's all it will take to learn the issues and send a letter to your elected officials. The actions of our government have an enormous impact so please educate yourself and take action. Please take the following actions: Send a Letter to your elected officials and tell them to pass important legislation that we are following for you.
Do You Have Five Minutes?
That's all it will take to learn the issues and send a letter to your elected officials. The actions of our government have an enormous impact so please educate yourself and take action. Please take the following actions: Send a Letter to your elected officials and tell them to pass important legislation that we are following for you.
You can look up represenative and email them directly online at:
http://www.capwiz.com/curesearch/home/
The online form letter is:
Dear [recipient name was inserted here],
I am writing to thank you for your support of the Conquer Childhood Cancer Act HR 1553. This legislation is an important step in the fight against childhood cancer.As you know, everything we know about childhood cancer has been learned through research. The money authorized in this bill, $30 Million every year for the next five years, will allow pediatric oncology researchers to investigate critical questions about childhood cancer and to translate these findings into life saving treatments.
There has been a lot of progress in finding cures but sadly, cancer remains the #1 cause of death by disease in children. I am pleased that you are a leader in this effort. The children in our district and across the country deserve the very best that scientific research has to offer. Thank you again for using your elected office to be a voice for children with cancer.
Sincerely,
[you name here]
Conquer Childhood Cancer video:
www.youtube.com/watch?v=AGS4yE5v9rM
Monday, October 15, 2007
10/15/2007
The results of the 3rd MRI indicate that the tumor is growing. Please respect the family's privacy as they meet with doctors to determine what the next step is.
The family appreciates all your ongoing support. Please keep Caitlyn and her family in your prayers in the days ahead.
More info to be posted soon
Thank you,
-Friends of the Churak Family
The family appreciates all your ongoing support. Please keep Caitlyn and her family in your prayers in the days ahead.
More info to be posted soon
Thank you,
-Friends of the Churak Family
Saturday, October 13, 2007
10/18/2007 - Wine Tasting
Date: Oct 18, 2007 (Thu)
Time: 6:30 PM - 9:00 PM
Cost: $10.00
Place:
Dobby's World Wide Wine & Liquors
15 S. Brockway
Palatine, IL 60067
Taste wine, savor delicious hors d'oeuvres from local restaurants -- Lamplighters, Durty Nellies, Heng Wing, Artistic Cuisine and Siri Thai,
Portion of proceeds will be donated to the Caitlyn Churak Medical Fund.
Friday, October 5, 2007
10/10/2007
We seem to be a lot more busy now that school is in full swing; and I don't seem to find the time to post. Caitlyn is still doing well. I can not tell you how lucky we feel that she is doing so good.
I am sad to say that three more angels have received their wings. Hannah Deals, Trinity Bright, and Sophie Quayle. All three were also diagnosed with a DIPG tumor just like Caitlyn's. I try not to follow too many cases because they all seem to follow the same path. It hurts just as much as if it was my own when we lose another child to this. Please say a pray for these familes.
Caitlyn will have another MRI on October 15th to determine if the tumor is growing or dying, but for now she is feeling well and that makes us all very happy.
The boys are doing great and loving 2nd grade. Caitlyn is loving Kindergarten as well. Everything feels like it supposed to for now and that is something to be grateful for. We just want to thank all our family, friends, school, parish,and community for the continued support.
You all continue to show us that Caitlyn has touched your lives in some way. Our friends that helped with the fundraiser on September 23rd -- continue to receive calls from people in the community that want to contribute to the next fundraiser or who want to give a gift to Caitlyn.
This is way beyond the impact that we expected to have. I know God knew what this would do to the community. This is just another example of why we must always be listening because you never know when He will be talking to you. Please continue to pray for Caitlyn and the other children.
The Churak Family
******Thank you, Thank you, Thank you
Many thanks to St. Theresa School for the dress down day donation. The student Council designated an out of uniform day in September for Caitlyn. This made Caitlyn and her brothers feel very special. I am so proud of the STS children. They have such compassion for one another. When I come to the school to help out in the classrooms I'm always asked by the other children how she is doing. That says a lot for 7 year olds and 5 year olds.
Thank you also to St Thomas of Villanova who so generously donated proceeds from their bake sale and out of uniform to Caitlyn's medical fund. Thank you to Quest Academy who thoughtfully gave a gift basket to the family, and a gift basket to each of the kids. The kids looooved everything. We appreciate your genorosity, thoughtfulness, and kindness. It means a lot that other schools in the community care enough to think of us.
Thank you again for keeping us in your hearts.
I am sad to say that three more angels have received their wings. Hannah Deals, Trinity Bright, and Sophie Quayle. All three were also diagnosed with a DIPG tumor just like Caitlyn's. I try not to follow too many cases because they all seem to follow the same path. It hurts just as much as if it was my own when we lose another child to this. Please say a pray for these familes.
Caitlyn will have another MRI on October 15th to determine if the tumor is growing or dying, but for now she is feeling well and that makes us all very happy.
The boys are doing great and loving 2nd grade. Caitlyn is loving Kindergarten as well. Everything feels like it supposed to for now and that is something to be grateful for. We just want to thank all our family, friends, school, parish,and community for the continued support.
You all continue to show us that Caitlyn has touched your lives in some way. Our friends that helped with the fundraiser on September 23rd -- continue to receive calls from people in the community that want to contribute to the next fundraiser or who want to give a gift to Caitlyn.
This is way beyond the impact that we expected to have. I know God knew what this would do to the community. This is just another example of why we must always be listening because you never know when He will be talking to you. Please continue to pray for Caitlyn and the other children.
The Churak Family
******Thank you, Thank you, Thank you
Many thanks to St. Theresa School for the dress down day donation. The student Council designated an out of uniform day in September for Caitlyn. This made Caitlyn and her brothers feel very special. I am so proud of the STS children. They have such compassion for one another. When I come to the school to help out in the classrooms I'm always asked by the other children how she is doing. That says a lot for 7 year olds and 5 year olds.
Thank you also to St Thomas of Villanova who so generously donated proceeds from their bake sale and out of uniform to Caitlyn's medical fund. Thank you to Quest Academy who thoughtfully gave a gift basket to the family, and a gift basket to each of the kids. The kids looooved everything. We appreciate your genorosity, thoughtfulness, and kindness. It means a lot that other schools in the community care enough to think of us.
Thank you again for keeping us in your hearts.
Friday, September 28, 2007
09/26/2007
What Cancer Can't do
Cancer is limited
It cannot cripple love,
It cannot shatter hope,
It cannot erode faith,
It cannot destroy peace,
It cannot kill friendship,
It cannot suppress memories,
It cannot silence courage,
It cannot steal eternal life,
It cannot CONQUER THE SPIRIT!
THANK YOU FOR YOUR SUPPORT
-The Churak Family
What a turn out on Sunday---We had close to 500 people attend the fundraiser. We can not tell you how much this touched our hearts. The words Thank You do not seem like enough to express our appreciation.
You know who you are, but I'll say it anyway Margaret, Cindy, Susan, Jean, Jennifer, Carrie, Amy & Tom, Vicky & Ken, Nancy and countless others. You did a GREAT job. If you guys did medical research the way you organize a fundraiser I know I would sleep easy every night.
Thank you for bringing a community together to give a 5 year old girl a day she will never forget. Caitlyn had such a good time! Since diagnosis (4 months ago), Caitlyn has received more love and compassion from everyone -- than some people see in a lifetime. This has helped Caitlyn's attitude and made her feel so special.
I read about other children battling this disease and their stories changed my life. The day Caitlyn was born she touched the hearts of her family; and I am so thankful that she has been able to touch other people's hearts as well. People tell me everyday how her story has changed their life. They appreciate family more, they try not to take things for granted, and the time they spend with their children is a little more precious. I know everything happens for a reason; and if what has happened to Caitlyn makes people appreciate life more then that is one positive outcome.
Caitlyn is still doing well, but we can never forget that the road can change at anytime for us. We still pray everyday for Caitlyn and continued good health. We pray for a cure so that Caitlyn and all the other BSG kids are able to grow old and live life without the fear of cancer.
We will post some pictures soon.
Please see all the people that made the fundraiser possible:
www.caitlynchurak.com/indexfiles/thanks4.htm
Pictures:
www.caitlynchurak.com/indexfiles/photo4.htm
Thank you and God Bless,
The Churak Family
Cancer is limited
It cannot cripple love,
It cannot shatter hope,
It cannot erode faith,
It cannot destroy peace,
It cannot kill friendship,
It cannot suppress memories,
It cannot silence courage,
It cannot steal eternal life,
It cannot CONQUER THE SPIRIT!
THANK YOU FOR YOUR SUPPORT
-The Churak Family
What a turn out on Sunday---We had close to 500 people attend the fundraiser. We can not tell you how much this touched our hearts. The words Thank You do not seem like enough to express our appreciation.
You know who you are, but I'll say it anyway Margaret, Cindy, Susan, Jean, Jennifer, Carrie, Amy & Tom, Vicky & Ken, Nancy and countless others. You did a GREAT job. If you guys did medical research the way you organize a fundraiser I know I would sleep easy every night.
Thank you for bringing a community together to give a 5 year old girl a day she will never forget. Caitlyn had such a good time! Since diagnosis (4 months ago), Caitlyn has received more love and compassion from everyone -- than some people see in a lifetime. This has helped Caitlyn's attitude and made her feel so special.
I read about other children battling this disease and their stories changed my life. The day Caitlyn was born she touched the hearts of her family; and I am so thankful that she has been able to touch other people's hearts as well. People tell me everyday how her story has changed their life. They appreciate family more, they try not to take things for granted, and the time they spend with their children is a little more precious. I know everything happens for a reason; and if what has happened to Caitlyn makes people appreciate life more then that is one positive outcome.
Caitlyn is still doing well, but we can never forget that the road can change at anytime for us. We still pray everyday for Caitlyn and continued good health. We pray for a cure so that Caitlyn and all the other BSG kids are able to grow old and live life without the fear of cancer.
We will post some pictures soon.
Please see all the people that made the fundraiser possible:
www.caitlynchurak.com/indexfiles/thanks4.htm
Pictures:
www.caitlynchurak.com/indexfiles/photo4.htm
Thank you and God Bless,
The Churak Family
09/09/2007
Thanks to everyone who showed up and rode at the Cruizin for Caitlyn event. It was amazing to see so many people turn out for the event. The kids had a great time and looooved all the motorcycles.
Thanks to Possum Pub for hosting the event. Huge thanks to Wally & Tracy, and Mary Ann.. Thank you for your genorosity, thanks you for attending and thanks to Mark "Flashback" Lorence.
Pictures to be posted soon.......
Thanks to Possum Pub for hosting the event. Huge thanks to Wally & Tracy, and Mary Ann.. Thank you for your genorosity, thanks you for attending and thanks to Mark "Flashback" Lorence.
Pictures to be posted soon.......
Tuesday, September 18, 2007
09/18/2007 - MRI #2
We have received the results from Caitlyn's MRI that she had on Monday.
They are not as positive as we were hoping for. Although they still show hope. The tumor has increased in size by 20% and the tumor mass has changed form. Dr. Goldman says the results are not conclusive as to what the tumor is doing. The tumor shows a change in mass form. Before it was a solid mass. Now it is like a misshaped wedding band. There is a black mass with a white band around it. This can mean one of two things -- the tumor is dying or the tumor is growing. They want to watch her closely and do another MRI in 4 weeks. They feel with the next MRI they will be able to tell us for sure if it is dying or growing.
Caitlyn still remains symptom free. She is showing signs of fatigue and irritability. Which can be a sign of tumor re-grow or it could mean she is just tired.
We will continue to pray that this is going in the right direction and put this in Gods hands because that is all we can do for now. Please continue to pray for Caitlyn. We would like to thank everyone for your out pour of thoughts and prayers for Caitlyn. You all have made her feel so special.
Thank you.
The Churak Family
They are not as positive as we were hoping for. Although they still show hope. The tumor has increased in size by 20% and the tumor mass has changed form. Dr. Goldman says the results are not conclusive as to what the tumor is doing. The tumor shows a change in mass form. Before it was a solid mass. Now it is like a misshaped wedding band. There is a black mass with a white band around it. This can mean one of two things -- the tumor is dying or the tumor is growing. They want to watch her closely and do another MRI in 4 weeks. They feel with the next MRI they will be able to tell us for sure if it is dying or growing.
Caitlyn still remains symptom free. She is showing signs of fatigue and irritability. Which can be a sign of tumor re-grow or it could mean she is just tired.
We will continue to pray that this is going in the right direction and put this in Gods hands because that is all we can do for now. Please continue to pray for Caitlyn. We would like to thank everyone for your out pour of thoughts and prayers for Caitlyn. You all have made her feel so special.
Thank you.
The Churak Family
Sunday, September 16, 2007
09/17/2007
Hi Everyone --
Please say a prayer for Caitlyn and the Churak family today.
Today, Caitlyn has her 2nd post radiation MRI. Caitlyn is still symptom free; so we pray that this MRI scan shows that the tumor has shrunk even more. Caitlyn has defied odds so far; so we continue to pray for miraculous things! Results will be posted tomorrow (Tues).
Thank you and God Bless
The Friends of Caitlyn Churak
Please say a prayer for Caitlyn and the Churak family today.
Today, Caitlyn has her 2nd post radiation MRI. Caitlyn is still symptom free; so we pray that this MRI scan shows that the tumor has shrunk even more. Caitlyn has defied odds so far; so we continue to pray for miraculous things! Results will be posted tomorrow (Tues).
Thank you and God Bless
The Friends of Caitlyn Churak
Saturday, September 8, 2007
09/08/2007
Hi Everyone --
This is just a reminder of the 9/23/2007 fundraiser for the Churak Family. The event will take place at Durty Nellies in Palatine from 3p-7p. (www.durtynellies.com/directions.html)
This is going to be a day of fun for friends and families (kids are welcome). We are going to have live music, kid's activities, and a special appearance by Miss Illinois. Food and pop are included and there is a cash bar.
Many people and businesses have donated GREAT items for the silent auction and raffle -- we have over 50 raffle / silent auction items so your chance of winning is good. Please feel free to bring friends, family, and neighbors to show your support for Caitlyn ---it is going to be a fun event.
You can pay at the door the day of the event or online at: http://www.caitlynchurak.eventbrite.com/.
Miracles Happen Everyday and with your help it can be Caitlyn
Thank you and God Bless
Friends of Caitlyn Churak
Wednesday, August 29, 2007
08/30/2007
I am sorry for the lack of updates. I have been trying to stay away from my computer since Caitlyn finished her radiation treatment. I get too caught up in searching for a cure and never seem to find one.
This as you can imagine puts me in the wrong state of mind. Feeling overwhelmed with sadness and unable to enjoy the miracle that we have been given. We have been so lucky to have Caitlyn back to good health. The cancer is still there but they have been able to make the tumor shrink which has relieved her of her symptoms. How long this will last....is too hard on our hearts for us to even think about. So we have to enjoy the good times that we are blessed with. I will make this a positive and uplifting update.
Here is a list of things that I am thankful for today.
-Caitlyn is going to school with her brothers. We did not think we would see this day. She loves seeing her classmates from 3yr old and 4yrs old preschool. She looks so darn cute in that uniform.
- I look forward to Halloween with the kids and seeing them in their costumes running from house to house trick or treating.
- I look forward to the family running the Thanksgiving Turkey trot.
- I look forward to seeing all three kids for the first time together in the Christmas pageant.
- I look forward to the boys first communion.
- I look forward to all three kids for the first time together in the spring musical at school for the K-3 graders.
- I look forward to looking forward to tomorrow. Because with her health stable I can not allow myself to dwell on what this cancer has in store. I have to believe she will be different she will be a miracle.
Thank you so much for all the emails and guest book signings. It has been nice to see so many of you back at school. We have met so many new friends this summer. People that have come to offer support and comfort. It has meant so much. So many of these people have had suffering of their own; and shared their stories with me. Meeting these women (a.k.a moms) has made me see that I can survive this, as unsurvivable as it seems. I believe I have met you all for a reason. You know who you women are. I want to thank you from the bottom of my heart.
Please continue to pray for Caitlyn and all the other sick children. I know we are not the only ones. I do believe your prayers are working.
Kara
This as you can imagine puts me in the wrong state of mind. Feeling overwhelmed with sadness and unable to enjoy the miracle that we have been given. We have been so lucky to have Caitlyn back to good health. The cancer is still there but they have been able to make the tumor shrink which has relieved her of her symptoms. How long this will last....is too hard on our hearts for us to even think about. So we have to enjoy the good times that we are blessed with. I will make this a positive and uplifting update.
Here is a list of things that I am thankful for today.
-Caitlyn is going to school with her brothers. We did not think we would see this day. She loves seeing her classmates from 3yr old and 4yrs old preschool. She looks so darn cute in that uniform.
- I look forward to Halloween with the kids and seeing them in their costumes running from house to house trick or treating.
- I look forward to the family running the Thanksgiving Turkey trot.
- I look forward to seeing all three kids for the first time together in the Christmas pageant.
- I look forward to the boys first communion.
- I look forward to all three kids for the first time together in the spring musical at school for the K-3 graders.
- I look forward to looking forward to tomorrow. Because with her health stable I can not allow myself to dwell on what this cancer has in store. I have to believe she will be different she will be a miracle.
Thank you so much for all the emails and guest book signings. It has been nice to see so many of you back at school. We have met so many new friends this summer. People that have come to offer support and comfort. It has meant so much. So many of these people have had suffering of their own; and shared their stories with me. Meeting these women (a.k.a moms) has made me see that I can survive this, as unsurvivable as it seems. I believe I have met you all for a reason. You know who you women are. I want to thank you from the bottom of my heart.
Please continue to pray for Caitlyn and all the other sick children. I know we are not the only ones. I do believe your prayers are working.
Kara
Tuesday, August 28, 2007
08/29/2007
Hello Everyone-- Kara asked me to post today. The kids started back to school last week and it has been a busy couple of weeks. Caitlyn is still doing well. She is very excited to be starting Kindergarten.
With summer winding down and school back in session; the family is trying to get back on a school schedule, and return some degree of normalcy back to their life.
Caitlyn has her next scheduled MRI on 9/17/2007. That being said, these MRI's cause a certain amount of anxiety. Please keep Caitlyn & her family in your prayers and pray that this scan confirms that Caitlyn is continuing to defy odds
Thank you and God Bless
Margaret Donahue (friend of Churak family)
With summer winding down and school back in session; the family is trying to get back on a school schedule, and return some degree of normalcy back to their life.
Caitlyn has her next scheduled MRI on 9/17/2007. That being said, these MRI's cause a certain amount of anxiety. Please keep Caitlyn & her family in your prayers and pray that this scan confirms that Caitlyn is continuing to defy odds
Thank you and God Bless
Margaret Donahue (friend of Churak family)
Tuesday, August 14, 2007
8/14/2007
Caitlyn and I had a wonderful time at the fundraiser on Monday. Her God Mother Susan put on a very elegant ladies night out at Francesca's of Barrington with the help of Christina Currie. We were surrounded by so many caring moms it was a pleasure to meet all of you. Caitlyn wore her Belle dress that she got in Disney along with the crown and looked just like a princess. She had such a great time I truly enjoyed watching her face glow with happiness all night long. Thank you Susan, that event had you written all over it.
Thank you to Susan Buerckholtz and the other moms that helped her with the bake sale. I'm sorry I missed it. It sounds like you all had fun. Thank you.
Thank you to Anne Koehlinger from STS who worked hard this summer selling flower pens for Caitlyn. It was nice to meet you.
Caitlyn is really looking forward to starting Kindergarten this year. We are really excited that she will be starting the year feeling so good. She is still doing very well and we hope this miracle continues. She will be taking a break from her chemo pills this week and then will go back on it for another 3 weeks straight. She will continue the protocol where she will be on for 3 weeks then off 1 week; with each cycle increasing her dose. With each new cycle we pray she will continue to tolerate the medicine/treatment.
Thank you everyone for your prayers and support.
The Churak Family
Wednesday, August 8, 2007
8/08/2007
We are back!!! We had a great time. The kids loved Disney.
I don't know if any of you know about Give Kids The World. It is an organization that is based in Kissamee Florida. It helps children with life threatening illnesses fulfill a dream. If you are ever looking for an organization to support there is more info available at:
http://www.gktw.org/
http://www.wish.org/
Caitlyn is doing great!! She enjoyed Disney soooo much. She got LOTS of autographs from all the Disney characters. Thanks to the Make-a-Wish foundation, the whole family was treated like royalty. We were all made to feel so very special. Every character she met and every Disney employee she encountered greeted Caitlyn with extra love and attention. It was enough to make her mom and dads' eyes water the first couple of days. We cannot thank Make -A-Wish and Give Kids The World enough!
Our trip at Disney was followed by a trip to Coco Beach where we spent some time on the beach and in the pool. The boys tried surfing and did quite well at it. Caitlyn made sand castles and collected sea shells with mom.
Caitlyn is doing so good it is hard to believe just a little over two months ago she was given only 6 to 9 months to live. Once we got home from our trip I realized I had gone at least one whole day where I did not think about her illness. I had forgotten it. She looks so good you would be knocked over if you just met her and I told you about her serious condition. It just does not seem possible, since she shows no signs of this horrible cancer.
We returned on Sunday; and I took her on Monday to Children's for her routine appointment. I was able to see her MRI. I could not believe the difference in size between the two pictures -- her first MRI to her latest one. There was some white spots in the middle of her tumor. I asked the doctor what those were. The attending doctor at the time responded with, "They might be blood vessels or dead cells". They can not tell for sure without a biopsy -- which of course they cannot do because of the tumor location. I just have to believe that it is dead cells; with the way shrunk and her great improvement. Only time will tell, but I feel she will be a miracle.
Please continue to pray for Caitlyn I do believe it is working. I just know she is going to be that two percent we are praying for that comes through this. We still have a long way to go but at least we have a good today to help us through til tomorrow. That is all we can ask for on a journey like this. With every good day that we have, it opens our hearts up more to all the other children who are suffering and their families. Thank you and God Bless you for all your prayers and support.
Please don't forget the other children who are suffering as well. Please say a special prayer for Trinity Bright http://www.caringbridge.org/visit/trinitybright
I will try and post some pictures soon.
The Churak Family
I don't know if any of you know about Give Kids The World. It is an organization that is based in Kissamee Florida. It helps children with life threatening illnesses fulfill a dream. If you are ever looking for an organization to support there is more info available at:
http://www.gktw.org/
http://www.wish.org/
Caitlyn is doing great!! She enjoyed Disney soooo much. She got LOTS of autographs from all the Disney characters. Thanks to the Make-a-Wish foundation, the whole family was treated like royalty. We were all made to feel so very special. Every character she met and every Disney employee she encountered greeted Caitlyn with extra love and attention. It was enough to make her mom and dads' eyes water the first couple of days. We cannot thank Make -A-Wish and Give Kids The World enough!
Our trip at Disney was followed by a trip to Coco Beach where we spent some time on the beach and in the pool. The boys tried surfing and did quite well at it. Caitlyn made sand castles and collected sea shells with mom.
Caitlyn is doing so good it is hard to believe just a little over two months ago she was given only 6 to 9 months to live. Once we got home from our trip I realized I had gone at least one whole day where I did not think about her illness. I had forgotten it. She looks so good you would be knocked over if you just met her and I told you about her serious condition. It just does not seem possible, since she shows no signs of this horrible cancer.
We returned on Sunday; and I took her on Monday to Children's for her routine appointment. I was able to see her MRI. I could not believe the difference in size between the two pictures -- her first MRI to her latest one. There was some white spots in the middle of her tumor. I asked the doctor what those were. The attending doctor at the time responded with, "They might be blood vessels or dead cells". They can not tell for sure without a biopsy -- which of course they cannot do because of the tumor location. I just have to believe that it is dead cells; with the way shrunk and her great improvement. Only time will tell, but I feel she will be a miracle.
Please continue to pray for Caitlyn I do believe it is working. I just know she is going to be that two percent we are praying for that comes through this. We still have a long way to go but at least we have a good today to help us through til tomorrow. That is all we can ask for on a journey like this. With every good day that we have, it opens our hearts up more to all the other children who are suffering and their families. Thank you and God Bless you for all your prayers and support.
Please don't forget the other children who are suffering as well. Please say a special prayer for Trinity Bright http://www.caringbridge.org/visit/trinitybright
I will try and post some pictures soon.
The Churak Family
Friday, July 27, 2007
07/27/2007
In two hours a white stretch limo will pick us up to kick off Caitlyn's trip of a lifetime. A trip that she has been granted by the Make-A-Wish foundation.
We will be making some great memories on this trip. We are going to Disney World and then on to Coco Beach to watch a rocket launch at Cape Canaveral. Patrick and Jackson are really looking forward to the rocket launch to Mars. Caitlyn can't wait to meet Cinderella. All the kids are so excited and having been talking non-stop about our big adventure.
Thank you for all the prayers that continue to come in. Thanks to all the things that our friends and family have done and are doing for us. We truly feel loved and lucky that Caitlyn is doing so well right now. Please pray that she continues to respond to treatment.
Thank you,
The Churak Family
We will be making some great memories on this trip. We are going to Disney World and then on to Coco Beach to watch a rocket launch at Cape Canaveral. Patrick and Jackson are really looking forward to the rocket launch to Mars. Caitlyn can't wait to meet Cinderella. All the kids are so excited and having been talking non-stop about our big adventure.
Thank you for all the prayers that continue to come in. Thanks to all the things that our friends and family have done and are doing for us. We truly feel loved and lucky that Caitlyn is doing so well right now. Please pray that she continues to respond to treatment.
Thank you,
The Churak Family
Tuesday, July 24, 2007
07/24/2007 - MRI #1
This is hopefully the first in many MIRACLES to come our way
Caitlyn's tumor has shrunk by 75%.
The size of tumor at diagnosis was 4.4 x 4.3 x (i don't have 3rd number).
The tumor is now 2.8 x 1.77 x 1.6.
People who know anything about diffuse intrinsic pontine glioma know that this is good news; because so many children don't even respond to a treatment protocol.
Caitlyn is defying the odds and this alone is a MIRACLE. Please pray that the tumor continues to shrink. We still have to get rid of 25%. Any cell left is a cell that can grow back.
THANKS FOR ALL YOUR PRAYERS. THANK YOU GOD, THANK YOU!!!
The Churak Family
please click below if you would like to leave a message.
Caitlyn's tumor has shrunk by 75%.
The size of tumor at diagnosis was 4.4 x 4.3 x (i don't have 3rd number).
The tumor is now 2.8 x 1.77 x 1.6.
People who know anything about diffuse intrinsic pontine glioma know that this is good news; because so many children don't even respond to a treatment protocol.
Caitlyn is defying the odds and this alone is a MIRACLE. Please pray that the tumor continues to shrink. We still have to get rid of 25%. Any cell left is a cell that can grow back.
THANKS FOR ALL YOUR PRAYERS. THANK YOU GOD, THANK YOU!!!
The Churak Family
please click below if you would like to leave a message.
Tuesday, July 17, 2007
07/17/2007
A few of Caitlyn's Angels
Caitlyn had her appointment with Dr. Goldman today. She is still doing good, and still symptom free. She seems to have a little runny nose but the doctors feel it is just a cold and not a symptom of the cancer. Her steroids were cut down to just a quarter of a mg. We will watch her this week; and if she does good then Monday we will take her off it all the way.
Dr. Goldman says she looks good; but after biting my tongue for 6 weeks I had to ask the question that I know he does not have an answer for, "Since she is symptom free does this mean she will be cured?" Of course he did not have an answer and how could he. This is something only time will tell.
I know there are many people like me who search the internet for information about pontine glioma. I know there are parents who travel the country looking for treatments with a promise of survival; and sadly for this type of cancer there are none.
Despite this, there are some doctors that can make even the worse situation feel better; and then there are some (way to many) who can make the worst diagnosis feel very dark and lonely. Since May 23rd, we have had our share of doctors who have made us feel like we were in such a dark cave of despair.
The sadness was truly unbearable; until we met Dr. Goldman. He has told us the same thing the other doctors told us--but with a compassion and sensitivity that made hearing the news from him easier to take. If there is anyone out their that is looking for treatment options. I know I have read a few sites where people are searching . I would recommend seeing Dr Goldman. He can't tell you anything different than the other doctors; but the way he delivers information and the manner in which he cares for children makes all the difference when you are looking at these type of survival statistics.
We have seen Caitlyn's Angels in Action in many different forms
Caitlyn's coins continues to bring in donations from people who are made aware of our situation by Liz Meyers. These people do not even know us but are moved by Liz's compassion for others. I believe their generosity is a testament of gratitude for having Liz in their lives. Liz you are truly one of Caitlyn's angels !
Thank you to Katie, Sarah , Abby, and Julia . For their hard work at their lemonade stand to raise Coins for Caitlyn (see pix above). Children truly are Gods Angels here on earth. Katie, your kindness to Caitlyn has been seen many times this summer. I'm sure your parents are very proud of your compassion for others.
Another act of kindness came from Kathleen Finis and all her helpers. Our families have never met but we attend the same school. They were touched by Caitlyn's story and decided to have a bake sale with 11 kids and their parents from the neighborhood. Thank you for your thoughtfulness, prayers and compassion.
Thank you to St.Theresa for your donation. We were truly touched that you choose our family for the donation. Thanks.
Thank you, Thank you, Thank you again. Thank you all for caring. Thank you for your prayers. Thank you does not seem to be the right word to express our gratefullness; but please know our hearts are truly overwhelmed by your kindness.
When we started this web site it was established with the intentions of making our daughter known to the world. We were devastated by the news of her diagnosis along with it's very grim prognosis. The first thing that came to mind was she has not been here long enough to make her mark on the world. I just knew she still needed to touch so many more lives then just her own family's. With that in mind I asked my friend Margaret to start a web site for her. I wanted Caitlyn to touch the hearts of other peoples jut like she has ours. We just couldn't let her go without making an impact on other peoples lives.
I am touched daily by the impact that she is making on other people. Each and everyone of you who visit this site to follow her story, pray for her, contribute to her fund, or send her site to someone you know, are proof that this world is not desensitized by human suffering. Everyday we hear about violence and hate in the world; and it is so nice to know that there is still compassion for friends and strangers in the world. For me that is a very comforting while our family is on this journey that is so uncertain and to say the least terrifying. You have all helped us keep our faith in God and mankind and hope for a miracle high. We could not do this without ALL of you.
Please pray that Caitlyn stays symptom free now that her radiation is completed. This is the next critical step. The medication and radiation we believe have had a good effect on her since she is symptom free now. Her next MRI is Monday; and we will know more then.
We ask that you continue to pray that everything continues to head in the same direction that it is now. We also ask that you pray that Caitlyn gets over her cold and stays healthy and strong. Keep praying for a miracle for Caitlyn!
The Churak Family
Wednesday, July 11, 2007
07/12/2007
Today was Caitlyn's last day of radiation.
When you have big days in life it is important to dress for the occasion, so Caitlyn decided to wear her best dress and tiara to her last appointment. She caused quite the excitement at the hospital. She was a celebrity; and we were the paparazzi! See the photos at:
www.caitlynchurak.com/indexfiles/photo2.htm
For the past six weeks, Kara (and grandma Sharon or Dad and sometimes the boys) have been driving 2 hour a day to and from Palatine to Children's Memorial / Northwestern Memorial hospital, so they are all happy as well that radiation is coming to an end.
Please keep Caitlyn in your prayers, as she begins the next step of her treatment plan. Since this journey began, the Churaks have made some new friends. One of them is Chet Hammack. He is the grandfather of Aidan; also diagnosed with brain stem glioma. Aidan's site is: www.whynotaidan.com . Although the families have not met; Mr Hammack has responded to questions via email and been a support to the Churak family.
Kara asked that I share this email with all of you. She is posting this email so if other families are wondering what to expect when radiation ends they have an idea. Doctors tell you; but families that have been there are the real experts. Read below and remember to keep Caitlyn, Aidan, and all the other BSG children in your prayers!
--Margaret Donahue (friend of Churak family)
===================================================Kara,
Feeling nervous about the radiation treatments coming to an end is very very common and we too experienced it. Upon treatments ending the first thing we thought is… the treatments had made the situation so much better, and now we are doing nothing to help the situation at all. Well, we were wrong and we were concerned about nothing. Eventually we were told by the doctors that the radiation continues to do it’s thing for up to 6 to 8 weeks after the treatments had ended. We were also told not to get overly concerned if some symptoms reappear or actually worsen slightly during this 6 to 8 week period. Apparently the radiation actually causes swelling of the pons, and this effect continues for some time after treatments have ended. Fortunately Aidan never had any worsening of symptoms so our worries were diminished more then most. But, being the worry warts we are, we then begin to worry that he was not having symptoms, so the pons must not be swelling, and radiation must not be doing what it was intended to do. Can see where I am headed with this? The fact you love Caitlyn means you will most probably worry about her and her cancer from now on. The goods news is that the periods of time that you will not be worrying will grown in length, and the length of the times your are actively worrying will shorten. You can trust me on this because I have been there, and a year and three months later, I worry for Aidan each and everyday, but each day is better then the previous.
We were told a very important thing by Aidan’s Nurse Practitioner and it is something that may help you during the times the worries start to take over. Cancer symptoms do NOT come and go and remain constant at all times. The symptoms are due to the pressure the pons is putting upon the rest of the brain and this pressure does not come and go. If Caitlyn coughs it is most likely NOT because of the cancer, but it is because something has tickled her throat. If Caitlyn appears slightly more wobbly in the evening it is most likely NOT because of the cancer, but it is because she is tired and needs some rest. When you begin to get nervous, step back, take a deep breath, and consciously survey the situation and then determine if your nervousness if based upon sound reasoning. You are Caitlyn’s Mom, you will know whether your worries are for good reason or not.
Since I have already provided you a ton of advice you have not even asked for, I guess I will let my fatherly instincts provide you with one more thing… I don’t know you and I obviously have no idea what your beliefs are, but I have a story for you that you may find very hard to believe, but I will give you my word every bit of it is true….
Within a couple weeks of Aidan being diagnosed my wife was approached by a man at a fundraiser. She did not know this man and at first was a bit uncomfortable. The stranger nervously introduced himself and then quietly reached into his wallet and handed my wife a very small, well worn piece of a newspaper. On this newspaper clipping was the following:
Say this prayer nine times a day for nine days and then publish. You will then be provided your miracle.
May the sacred heart of Jesus be adored, glorified, loved, and preserved throughout the world now and forever.
Oh sacred heart of Jesus, pray for me.
Saint Jude worker of miracles, pray for me.
Saint Jude helper of the helpless, pray for me.
Well as you would have guessed, that day I started saying this prayer. I simply exchanged “pray for me” and added “pray for Aidan”. Well shortly thereafter Aidan started to make the progress that you see today. He has defied tremendous odds and his doctors are in awe as to how well he is doing. Well today is your lucky day because I am your stranger and I am giving you this prayer. You will not be saying it alone, because I have already exchanged “pray for Aidan” with “pray for Aidan, Caitlyn, and all other BSG children”.
You and Caitlyn are in our prayers,
Chet “Papa” Hammack
Sunday, July 8, 2007
07/08/2007
Sorry, I took the last week off from updating, so this may be long.
I'm still soul searching not so much how to get through this but what does this all mean. We saw a GREAT movie today called Evan Almighty. I had a few ooh moments during it -- like When God explained that God talks to us all and answers our prayers we just have to listen. If you pray for your family to be closer he does not necessarily send you all a warm fuzzy feeling inside about one another; but he gives you wood and tools to build an ark. ( you have to see the movie).
My question lately has been why did God give us Caitlyn if she only going to be here a short time. Also why were we given the knowledge that she may not be with us forever. Why do we have this grace period with an uncertain amount of time; but if you look at statistics death with in a few years. Why was she not taken instantly? Not that I would want that EVER. But what am I supposed to do with this grace period? What am I supposed to see? What have I been missing? What am I or Caitlyn supposed to finish? What are we to learn? There are so many questions and I keep my eyes open every day and try not to waste any moment of time.
Caitlyn is doing good. Her radiation will end this week - July 12th. The hair she lost is above her ears so her top hair covers it. Dr. Goldman is slowly taking her off the steroids. The steroid medicine has given Caitlyn a big appetite; so hopefully once she is off the medicine I will spend less time in the kitchen (YAY!)
Her MRI is July 23st. We don't expect to see much from it as her brain will be kind of jumbled from the radiation. They will just be able to tell if it is stable. We already think the tumor has shrunk because last week she had a cat scan. Caitlyn was soooooooo tired; and we were concerned -- so they did a cat scan just to make sure there was no water on the brain. It came back fine and Goldman told us it looks like the tumor has shrunk but he can not do any measurements with out an MRI. The reason she was soooo tired was too much FUN. We had a great 4th of July week.
I ran in the rally for young life 5K run. The route for this race runs right past our house. So halfway through the race, I got to my house and saw Jason and the kids sitting out front waiting for me to go by. This year Caitlyn, Jackson, and Patrick joined me as I went by. Caitlyn ran about a quarter of a mile with me. It was great. When she got tired we walked until we saw daddy with the car. I caught up with the boys and we all met daddy and Caitlyn at the finish line.
I have asked God numerous times for patience with my children and this is how he gave it to me. He had my three kids jump and join me during a 5k run just as I entered my zone. At first I thought, "Oh my time is going to stink!" Then I realized it's not the time we finish that counts but who was with along the way.
Thank you for visiting our site. Please don't forget about the other children who are linked to our site. So many are very close to getting their wings and need your prayers more then we do right now. Also please pray for Caitlyns uncle Mike who also battling a brain tumor as well. He started treatment the same time she did. This is such a coincidence because tumors are supposedly not genetic.
Kara
I'm still soul searching not so much how to get through this but what does this all mean. We saw a GREAT movie today called Evan Almighty. I had a few ooh moments during it -- like When God explained that God talks to us all and answers our prayers we just have to listen. If you pray for your family to be closer he does not necessarily send you all a warm fuzzy feeling inside about one another; but he gives you wood and tools to build an ark. ( you have to see the movie).
My question lately has been why did God give us Caitlyn if she only going to be here a short time. Also why were we given the knowledge that she may not be with us forever. Why do we have this grace period with an uncertain amount of time; but if you look at statistics death with in a few years. Why was she not taken instantly? Not that I would want that EVER. But what am I supposed to do with this grace period? What am I supposed to see? What have I been missing? What am I or Caitlyn supposed to finish? What are we to learn? There are so many questions and I keep my eyes open every day and try not to waste any moment of time.
Caitlyn is doing good. Her radiation will end this week - July 12th. The hair she lost is above her ears so her top hair covers it. Dr. Goldman is slowly taking her off the steroids. The steroid medicine has given Caitlyn a big appetite; so hopefully once she is off the medicine I will spend less time in the kitchen (YAY!)
Her MRI is July 23st. We don't expect to see much from it as her brain will be kind of jumbled from the radiation. They will just be able to tell if it is stable. We already think the tumor has shrunk because last week she had a cat scan. Caitlyn was soooooooo tired; and we were concerned -- so they did a cat scan just to make sure there was no water on the brain. It came back fine and Goldman told us it looks like the tumor has shrunk but he can not do any measurements with out an MRI. The reason she was soooo tired was too much FUN. We had a great 4th of July week.
I ran in the rally for young life 5K run. The route for this race runs right past our house. So halfway through the race, I got to my house and saw Jason and the kids sitting out front waiting for me to go by. This year Caitlyn, Jackson, and Patrick joined me as I went by. Caitlyn ran about a quarter of a mile with me. It was great. When she got tired we walked until we saw daddy with the car. I caught up with the boys and we all met daddy and Caitlyn at the finish line.
I have asked God numerous times for patience with my children and this is how he gave it to me. He had my three kids jump and join me during a 5k run just as I entered my zone. At first I thought, "Oh my time is going to stink!" Then I realized it's not the time we finish that counts but who was with along the way.
Thank you for visiting our site. Please don't forget about the other children who are linked to our site. So many are very close to getting their wings and need your prayers more then we do right now. Also please pray for Caitlyns uncle Mike who also battling a brain tumor as well. He started treatment the same time she did. This is such a coincidence because tumors are supposedly not genetic.
Kara
Tuesday, June 26, 2007
06/26/2007
Hi Everyone
Thank you for your thoughts and support. I have had several wow moments since people have been sharing Caitlyns story with friends and family. It is like that saying "6 degrees of separation or Kevin Bacon" (or something like that). Some how we really are all connected to each other.
People keep telling me that they think I'm strong; but when I hear that all I can think of is "that is the furthest thing that I feel". If it wasn't for Caitlyn and the boys I would be feeling a lot more sorry for myself. As you know with kids it doesn't matter how you feel you MUST go on, you MUST get out of bed, you MUST put a smile on you face. You must walk in the memorial day parade with the boy scouts pulling your daughter in a wagon -- Just 5 days after finding out your only daughter has anywhere from 6 months to 5 years to live. Make the most of everyday isn't that the expression? As parents we don't get a sick day; nor do they allow us to have a pity party for ourself.
Only children truly know how to make the best of everyday because they don't have to worry about tomorrow. I am following in their footsteps everyday. So when I get emails that say I seem so strong I have to give my three beautiful children a high five in my mind; for making me make the most of everyday we have together.
With that said let me tell you about our past week. Caitlyn is almost symptom free for now. Dr. Goldman told us "this is a good day" with a big smile on his face. There have been a few days that she was tired; but for the most part treatment has not slowed her down. Her face is puffy because of the effects of the steroids; and she has lost some hair.
Today Caitlyn was photographed with her radiologists Dr.Marymont at Northwestern Memorial Hospital. This was for NWMH medical journal that will feature an article about pediatrics and radiology at the hospital. She did a great job and only had to be bribed slightly to ham it up for the cameras with the doctor. For this she was allowed to wear a little mascara for her pictures. That was like winning the lottery for her. She loves makeup.
Our days are mostly filled with traveling down town and back. We are really looking forward to the end of our six week treatment plan of radiation; so we can start our summer fun. We have fit in a few play-dates, swimming at a friends pool, lunches downtown, and water gun fights with neighborhood kids. We are looking forward to Palatines 4th of July festival coming up this weekend. The boys will enjoy their 7th birthday at the CUBS game this Friday with their dad and uncle. For now I will follow the lead of my children's innocence to live each day to the fullest. I have been searching through books and and the internet trying to find out how to walk through this and realized it was sitting in front of me the whole time, and not very quietly I might add. I tell ya we can be so blind and deaf sometimes when looking for answers.
I hope everyone enjoys the 4th of July festivities in your home towns. This is one of our favorite times of the year. We will be enjoying the parades ( the kids love it for the candy), the carnival (cotton candy is the first stop), fireworks ( which we have to have oodles of glow sticks that make us just as dazzling as the firework show), and BBQ's with our family.
We truly appreciate everything you are all doing for us. All the cards, gifts and food are keeping our spirits high and making us feel loved and most importantly not alone.
Kara & family
Thank you for your thoughts and support. I have had several wow moments since people have been sharing Caitlyns story with friends and family. It is like that saying "6 degrees of separation or Kevin Bacon" (or something like that). Some how we really are all connected to each other.
People keep telling me that they think I'm strong; but when I hear that all I can think of is "that is the furthest thing that I feel". If it wasn't for Caitlyn and the boys I would be feeling a lot more sorry for myself. As you know with kids it doesn't matter how you feel you MUST go on, you MUST get out of bed, you MUST put a smile on you face. You must walk in the memorial day parade with the boy scouts pulling your daughter in a wagon -- Just 5 days after finding out your only daughter has anywhere from 6 months to 5 years to live. Make the most of everyday isn't that the expression? As parents we don't get a sick day; nor do they allow us to have a pity party for ourself.
Only children truly know how to make the best of everyday because they don't have to worry about tomorrow. I am following in their footsteps everyday. So when I get emails that say I seem so strong I have to give my three beautiful children a high five in my mind; for making me make the most of everyday we have together.
With that said let me tell you about our past week. Caitlyn is almost symptom free for now. Dr. Goldman told us "this is a good day" with a big smile on his face. There have been a few days that she was tired; but for the most part treatment has not slowed her down. Her face is puffy because of the effects of the steroids; and she has lost some hair.
Today Caitlyn was photographed with her radiologists Dr.Marymont at Northwestern Memorial Hospital. This was for NWMH medical journal that will feature an article about pediatrics and radiology at the hospital. She did a great job and only had to be bribed slightly to ham it up for the cameras with the doctor. For this she was allowed to wear a little mascara for her pictures. That was like winning the lottery for her. She loves makeup.
Our days are mostly filled with traveling down town and back. We are really looking forward to the end of our six week treatment plan of radiation; so we can start our summer fun. We have fit in a few play-dates, swimming at a friends pool, lunches downtown, and water gun fights with neighborhood kids. We are looking forward to Palatines 4th of July festival coming up this weekend. The boys will enjoy their 7th birthday at the CUBS game this Friday with their dad and uncle. For now I will follow the lead of my children's innocence to live each day to the fullest. I have been searching through books and and the internet trying to find out how to walk through this and realized it was sitting in front of me the whole time, and not very quietly I might add. I tell ya we can be so blind and deaf sometimes when looking for answers.
I hope everyone enjoys the 4th of July festivities in your home towns. This is one of our favorite times of the year. We will be enjoying the parades ( the kids love it for the candy), the carnival (cotton candy is the first stop), fireworks ( which we have to have oodles of glow sticks that make us just as dazzling as the firework show), and BBQ's with our family.
We truly appreciate everything you are all doing for us. All the cards, gifts and food are keeping our spirits high and making us feel loved and most importantly not alone.
Kara & family
06/19/2007
This last week has been the best week that we have all shared together in such a long time. There were changes in Caitlyn long before she was diagnosed with her brain tumor. The doctors have told me that Caitlyn's tumor has not been there very long; but I think what ever chemical imbalance that lead to the growth of cancer started with in the past year.
It was never anything medical; but something just seemed off with her. Nothing I could put my finger more of a gut feeling.I remember just before her symptoms started to show, thinking the tone of her voice didn't sound familiar and it hadn't for some time. Something about her spirit did not seem happy or at peace.I'm not one who goes around getting in tune with people's spirit and soul. I don't even go to church as much as I should. ( I do now ). I believe, however, a mother has a special gift to see inside their child. That doesn't mean we recognize it every time we see something wrong; and it may take us time to react on it; but we feel things.
I have felt so much in these past four weeks that I can only believe that this is all part of Gods plan. On May 23 my life changed forever, I changed forever. I will never look at the world again the same way. When Caitlyn was diagnosed with an inoperable cancer that gave her very little chance for survival I immediately mourned for my losses. All of the things that should have been for her. I mourned for all of the things I wanted to do with her. I cried for losses of my hopes and dreams for her. I couldn't close my eyes at night. because images of her would rush in of all the things that we had done, and all things that were still to come. The first week I cried and begged God to save Caitlyn. I asked over and over and over again to make her his miracle.
I still ask God to make her his miracle but I also know how many children are out there with cancer and other terminal diseases that need a miracle also. I see these children at the hospital and I see the looks on the parents faces and realized they are all asking for the same thing. I now pray less selfishly, just as hard for those children as I do my own. I wonder if Gods plan was to open my eyes to other people's pains. Sure I know terrible things happen and you feel sympathy for people but unless you walk through the pain you can't truly sympathize with them. You can only feel sympathy.
That's why we are adding other links to our site. Of other children who are suffering as well. I know we are not the only parents that are suffering and Caitlyn is not the only child with a terminal disease. I think in sharing information will help us realize there are so many others are in need.
Caitlyn's symptoms have cleared up dramatically; and the best gift is that her soul and spirit has returned. I truly feel like she has returned from a long vacation and we are getting to know each other again. This past week has been like getting reacquainted with an old friend. I know no matter how all this ends just having her spirit back is gift from God. I would have not said that four weeks ago. I would have wanted the whole package along with a promise of forever. I'm not saying I'm not asking for that; but I do recognize what God has given me this week, and for that I am truly grateful. Caitln is a gift and we are blessed to have her back.
Thank you to everyone for all the positive thoughts and prayers you have been sending.. I know you all have prayers of your own that need answering, and I want you to know that you are all in my prayers as well.
Kara Churak & family
It was never anything medical; but something just seemed off with her. Nothing I could put my finger more of a gut feeling.I remember just before her symptoms started to show, thinking the tone of her voice didn't sound familiar and it hadn't for some time. Something about her spirit did not seem happy or at peace.I'm not one who goes around getting in tune with people's spirit and soul. I don't even go to church as much as I should. ( I do now ). I believe, however, a mother has a special gift to see inside their child. That doesn't mean we recognize it every time we see something wrong; and it may take us time to react on it; but we feel things.
I have felt so much in these past four weeks that I can only believe that this is all part of Gods plan. On May 23 my life changed forever, I changed forever. I will never look at the world again the same way. When Caitlyn was diagnosed with an inoperable cancer that gave her very little chance for survival I immediately mourned for my losses. All of the things that should have been for her. I mourned for all of the things I wanted to do with her. I cried for losses of my hopes and dreams for her. I couldn't close my eyes at night. because images of her would rush in of all the things that we had done, and all things that were still to come. The first week I cried and begged God to save Caitlyn. I asked over and over and over again to make her his miracle.
I still ask God to make her his miracle but I also know how many children are out there with cancer and other terminal diseases that need a miracle also. I see these children at the hospital and I see the looks on the parents faces and realized they are all asking for the same thing. I now pray less selfishly, just as hard for those children as I do my own. I wonder if Gods plan was to open my eyes to other people's pains. Sure I know terrible things happen and you feel sympathy for people but unless you walk through the pain you can't truly sympathize with them. You can only feel sympathy.
That's why we are adding other links to our site. Of other children who are suffering as well. I know we are not the only parents that are suffering and Caitlyn is not the only child with a terminal disease. I think in sharing information will help us realize there are so many others are in need.
Caitlyn's symptoms have cleared up dramatically; and the best gift is that her soul and spirit has returned. I truly feel like she has returned from a long vacation and we are getting to know each other again. This past week has been like getting reacquainted with an old friend. I know no matter how all this ends just having her spirit back is gift from God. I would have not said that four weeks ago. I would have wanted the whole package along with a promise of forever. I'm not saying I'm not asking for that; but I do recognize what God has given me this week, and for that I am truly grateful. Caitln is a gift and we are blessed to have her back.
Thank you to everyone for all the positive thoughts and prayers you have been sending.. I know you all have prayers of your own that need answering, and I want you to know that you are all in my prayers as well.
Kara Churak & family
06/11/2007
This past week was starting out slow there was not a whole lot of change in Caitlyns symptoms. Despite this we tried to make the best of the last days of school for the year at St.Theresa. After treatment on Thursday we caught up with her brothers Patrick and Jackson at Field days. Caitlyn had a great time participating in Tug of War and relay races with the first grade classes.
Caitlyn has also been enjoying our rides downtown. While I drive, Caitlyn and Grandma Sharon sit in the back and color pictures for the art book they are making. We enjoyed the weekend with Grandpa Greg and Grandma Kathy who visited from Idaho .
We have received so many cards, letters, gifts, and visits from family, friends, and neighbors. We appreciate the prayers and positive thoughts. Our hearts are overwhelmed with gratitude to everyone who is helping us make this miracle happen.
I do believe it is working because today, just 13 days into her treatment she is running again, and can walk with out my help. When I look into her eyes I feel like I can see her returning to me. I know this is just the beginning and we still have a long way to go.
The one thing that concerns me is that she is having a reaction to the drug which is causing her to break out in a rash. We are hoping the cream the doctor prescribed will help cure that; but in addition we are asking for prayers. Please pray that Caitlyn’s body adjusts to the medicine.
Both doctors at Northwestern Memorial (Maryanne H. Marymont Radiation Oncology) and Children’s Memorial (Stewart Goldman) have been pleased with her progress. I truly believe it's a combination of the treatment and the constant reminder that she has been receiving everyday from all of you. It is wonderful to know how much she is loved and prayed for. Please continue to keep Caitlyn in your thoughts because this will keep her strong in the days ahead.
We also want to thank St.Theresa's first grade classes for the wonderful basket of build-a-bear stuff for Caitlyn and for being so thoughtful and including Patrick and Jackson. This has been a hard time for them as well.
Thank you,
Kara Churak & Family
Caitlyn has also been enjoying our rides downtown. While I drive, Caitlyn and Grandma Sharon sit in the back and color pictures for the art book they are making. We enjoyed the weekend with Grandpa Greg and Grandma Kathy who visited from Idaho .
We have received so many cards, letters, gifts, and visits from family, friends, and neighbors. We appreciate the prayers and positive thoughts. Our hearts are overwhelmed with gratitude to everyone who is helping us make this miracle happen.
I do believe it is working because today, just 13 days into her treatment she is running again, and can walk with out my help. When I look into her eyes I feel like I can see her returning to me. I know this is just the beginning and we still have a long way to go.
The one thing that concerns me is that she is having a reaction to the drug which is causing her to break out in a rash. We are hoping the cream the doctor prescribed will help cure that; but in addition we are asking for prayers. Please pray that Caitlyn’s body adjusts to the medicine.
Both doctors at Northwestern Memorial (Maryanne H. Marymont Radiation Oncology) and Children’s Memorial (Stewart Goldman) have been pleased with her progress. I truly believe it's a combination of the treatment and the constant reminder that she has been receiving everyday from all of you. It is wonderful to know how much she is loved and prayed for. Please continue to keep Caitlyn in your thoughts because this will keep her strong in the days ahead.
We also want to thank St.Theresa's first grade classes for the wonderful basket of build-a-bear stuff for Caitlyn and for being so thoughtful and including Patrick and Jackson. This has been a hard time for them as well.
Thank you,
Kara Churak & Family
06/01/2007
These past 2 weeks have been life changing and have us moving in a hundred different directions at a fast pace to try and preserve the moment.We have thrown a birthday party for Caitlyn with all her classmates, family, dear friends, and neighbors. We also had family portraits taken. We went with extended family to the botanical gardens to take some memorable pictures together.
Our family is overcome by the love and support that our family, friends, church and school St. Theresa has shown our family in our time of need for love, support and trusting in the faith of God. I can not thank everyone enough and tell you how much it means. It is truly helping us keep our faith strong and hope for a miracle high.
When we received the news of Caitlyn's cancer on May 23 we were given a 2% chance to make it through the next year. We went straight to God and asked for better chances and two days later were told of a clinical trial that could give her a 25%. Again I went to God and said this is better but I need better than that. That night I found a boy in Seattle who has the same cancer and is in the same clinical trial and his tumor has shrunk 80%. I then thanked God and said I can pray on that. Caitlyn started her treatment May 30th.
She is 5 treatments into her 6 week treatment plan and in 8 weeks she will have another MRI that will tell us if she is responding to the treatment. We ask that you pray for us at this critical time of her treatment.
The Churak Family
Our family is overcome by the love and support that our family, friends, church and school St. Theresa has shown our family in our time of need for love, support and trusting in the faith of God. I can not thank everyone enough and tell you how much it means. It is truly helping us keep our faith strong and hope for a miracle high.
When we received the news of Caitlyn's cancer on May 23 we were given a 2% chance to make it through the next year. We went straight to God and asked for better chances and two days later were told of a clinical trial that could give her a 25%. Again I went to God and said this is better but I need better than that. That night I found a boy in Seattle who has the same cancer and is in the same clinical trial and his tumor has shrunk 80%. I then thanked God and said I can pray on that. Caitlyn started her treatment May 30th.
She is 5 treatments into her 6 week treatment plan and in 8 weeks she will have another MRI that will tell us if she is responding to the treatment. We ask that you pray for us at this critical time of her treatment.
The Churak Family
Subscribe to:
Posts (Atom)