This is just a quick post for Kara. She has been trying to find time to get on the computer but with everything going on, life is a little hectic. She asked me to post something because they are getting ready to take a quick road trip this weekend. Caitlyn, Jackson, and Patrick are looking forward to visiting The King (in Memphis). The kids are Elvis fans and like to sing Blue Suede Shoes ("You can do anything, but don't you step on my blue suede shoes." )
It is week 4 on the nimotuzamab treatment. The doctors say that it may take up to eight weeks for results. So far there is not a change in her symptoms. She continues to have balance issues, and her walk is wobbly. She can get around a little bit, but mostly requires assistance especially going up and down the stairs. She is still experiencing double vision ~ and was fitted for glasses to help with that. The biggest side effect from the new medicine is that she is extremely tired ~ and needs several naps to get through the day. They are also dealing with Caitlyn's hearty appetitte due to the steroid she is taking (prescribed to reduce swelling of the tumor).
The family is so grateful for the prayers for Caitlyn. They have been blessed to have such a supportive school, parish, and community. Your continued prayers for the family are greatly appreciated. Thank you for caring about the Churak Family.
~Margaret
